Chase Update

We've had a few doctor's visits in the last month, and a couple more tomorrow- so I'm sure I'll update this again then. But here's the latest.

Heart- met with Dr. Weinhaus 2 weeks ago for a follow up on Chase's surgery. They noticed his heart function wasn't what it should be, so they added two new meds and increased one he was already on. Today we went back in & to quote Dr. Larry "He is 100% better!" Excellent news. I guess it was not good at all at the last visit. Normal output is about 55-60% (how much blood is pumped out)- Chase's last visit, he was 20%. . . good thing they didn't tell me that, can you imagine??? Well, now it's 44% which is awesome. They're going to keep him on the meds, probably till the next surgery, which is 2-4 (maybe) years away.

Feet- we had to go back in last week bc Houdini feet over here kept slipping his left foot out. It was as annoying as he is cute. You'd literally tie the shoe, turn around and it'd be out. So they added more padding. We meet with Dr. Noonan tomorrow- so more later.

Liver- Chase's labs continue to come back good, so that is very promising. The older he gets with no symptons, the less likely this will be a big concern for him/us. GI doc put us on cereal, which Chase has decided he no longer likes. So we're starting baby food-only apples so far.
And it seems to be working- he's up 8oz in the last two weeks! Which is better than the 3oz the two weeks before.

Eyes- Chase's cardiologist thought he might have a big of a lazy eye- nothing that I've noticed & seriously, wouldn't I notice that? We spend countless HOURS staring at each other each day. Well we went in today, which was on the books for the 22q anyways & I was right! He is fine. Normal normal normal. We will follow up in 6 months, but it looks good. Although- Chase might want to start trying on glasses bc I'm blind as a bat (no comments please) and Dad wears contacts as well.

I think that's it for now. We've got Audiology and Feet tomorrow, so more then.