Chase Update

Since it's been awhile since I've done this my writing skills might be a little rusty.

I've been home for about 6 weeks now. I know this bc today Mom had to go back to work & yesterday I was being congratulated on blessing the Earth for 12 weeks. Pretty sweet.

All's good on the home front, Mom and I have been bouncing around from doctor to doctor. Here's a little breakdown of the medical version of my life:

Club feet- this is being handled by the pretty cool Dr. Ken Noonan. Apparently he's quite the man when it comes to Orthopedics. We hang out once a week and I get new casts put on. They are the full length supa casts made of plaster. The first time I had them put on it sucked, so I peed all over them (3 times) But now I'm used to them and Mom jokes that I'll be the only 6 month old with 6 pack abs from doing leg lifts. The plan is 5-6 weeks of casts (almost done) surgery on the 10th (next week) for a tenotomy- which is where they cut my tendon? I dunno, sounds bad but it's not. Then another MONTH in casts. After that I've gotta wear "special shoes" (call me Forest and I'll kick your butt) 24/7 until I can walk & then only at night/naps till I'm in school. It doesn't sound that great, but hey my feet are already looking better & if Troy Aikman can do it so can I.

22q11deletion- We've met with Dr Seroogy (Immunology) Dr Shaw (ENT for cleft pallet) and someone else I can't remember & all has come back positive! Well the news was positive, the tests were all fine. They're going to keep an eye on me & check on me once in awhile to make sure we're still all good. But right now I'm golden!
And the brand new diagnosis! Yep, 5 minutes before we checked out of the hospital the GI doc came in and busted out that I have something called "Alpha 1 Anti-trypsin deficiency" Apparently it's a genetic (not 22q related) issue where I don't make enough of this stuff, which can cause serious liver and lung damage. So if you think Mom was anal about the no smoking around me before, dude- she's got me on lock down now! It was a little scary at first bc worst case can be liver transplant and lung disease, but my GI doc DR Yaffe said my numbers aren't too bad and we'll just keep an eye on it. My pediatrician (the coolest Dr Christine Pagel) also told Mom that if I don't have any issues by 2 months that I might be one of those asymptomatic kids. That'd be pretty cool.

So that's where I'm at medically.

Now real life stuff? I'm pretty much the cutest kid ever. With a healthy ego too ;-) I'm smiling, chatting it up & hanging with my boys. Had our first play date on Saturday. Will was running all over the place! Even got his hands on a blow torch! But that's a story for when Mom's not looking.

Well, it's getting late & Mom is probably going to leave work early to pick me up.
It was fun catching up!
Chase