Some good news!

Today we had a casting appointment (change out the cast, not an audition- although Chase is cute enough to be on tv) at American Family Children's Hospital. It's his last cast before surgery next week & we met with Dr Nemeth, Dr Noonan was out today.

Anyways- the casting went fine, Chase ate and then promptly peed on everyone. I warned the doctor, but he said it's an occupational hazard. Probably wouldn't happen if they hadn't let him go all free willy- the other clinic covers him up. But hey, who am I to tell the man how to do his job ;-)

That was routine, but the big news came from our nuerology appointment on Monday. As some of my Facebook friends know I've gotten quite accustomed to waiting in doctor's offices. It usually doesn't bother me, hanging out with Chase is my favorite pastime, but Monday the fine folks at AFCH tested my limits. After waiting 30 mins for Dr Ishkandar to spend 5 mins with him, to be told we need new x-rays, waiting 45 mins for approval from Dean, then waiting on radiology- well- it was a really long apt (2.5 hrs) that ended with me just leaving & telling them to contact Chase's pediatrician. Which was never done.

Anyhoo- so since we were there today I had them page the good Dr. Ishkandar to get the results. More mix-up'd info later- I just got a call & ALL IS GOOD!!! We were told in the NICU after Chase was born that he had a "weak neck." This was thought to be an abnormality in the c1-c2 vertebrae. It was also something that carried over to Milwaukee Children's and was a pain in my butt because due to insurance reasons Milwaukee couldn't run any tests. So we finally got the confirmation today that Chase's neck is "perfectly normal" and we will need no follow-up.

Happy to cross another thing off the list!

And on a side notes, I realized in the last post that I did not update on his heart!

We are still seeing the AMAZING Dr. Larry Weinhaus, who has been incredible :-) Chase has had two echos since he's been home. He does have some "insufficiency" which is where the oxygenated blood mixes with the non-oxygenated blood, but it has not gotten any worse. There are several levels of severity I'm told (mild, mild-moderate, moderate, moderate-severe, and severe) Chase's is Moderate/moderate-severe. This is ultimately what could move up his next heart surgery. Dr Weinhaus is very happy with Chase's progress, and I've learned not to worry until the doctors worry. It goes much better that way :-)

So now you're fully updated!